Children at school may require special permission to allow them to eat, drink and use the toilet when they need to as needing the toilet frequently is a symptom of M.E. Castor chairs are wheelchairs for use indoors which require no turning circle so they can get to some places that would be inaccessible to a larger chair. There are also special chairs with a hole in the seat, which can be wheeled over the toilet and also used for showering/ washing. There are cushioned toilet seats for people who find hard seats painful. A raised toilet seat with handles or a grab rail might be of use if you have difficulty rising from a seated position. Social Services may be willing to provide any of this equipment. Although there is a risk of losing muscle bulk if you walk less, as long as you are aware of this, using a commode intelligently can increase flexibility. If walking is very limited, reducing the amount used on getting to the toilet can leave more walking ability free for other things such as going into other rooms, tackling stairs or going outside. You may be able to use toilet paper while sitting down. A commode or bottle can be useful if you need to go to the toilet frequently (especially if the bathroom is occupied!). If you can’t get to the toilet, use a commode or urine bottle (male and female versions available), or ladies’ slipper urinal (£6.25 from BOOTS – these can be used lying down). People with difficulty sitting up to use the toilet/ commode might benefit from having a back to front dining chair to lean forward onto, with a pillow for padding.

Household : Sleep : Travelling : Washing