How To find out more about M.E.
- ACTION FOR M.E. can provide details of LOCAL M.E. GROUPS or individual local contacts. Write to Action for M.E. 3rd Floor, Canningford House, 38 Victoria Street, BRISTOL, BS1 6BY or ring 0117 9279551
- THE M.E. ASSOCIATION, 4 TOP ANGEL, BUCKINGHAM INDUSTRIAL PARK, BUCKINGHAM, MK18 ITH and ACTION FOR M.E. P.O. BOX 1302, WELLS, BA5 1YE both have a range of leaflets and a quarterly magazine, among other services.
- Action for M.E. and some local M.E. groups have libraries from which members can borrow books about the illness and sometimes tapes, relaxation tapes or videos. Local libraries also lend books on M.E., and may be able to order books not on the shelves or out of print.
- CO-CURE (Co-Operate And Communicate For A Cure) list and website has up to date news and many medical references. Website: www.co-cure.org
- AXFORD’S ABODE includes links to international sites. Website: http://freespace.virgin.net/david.axford/me.htm
The Role of Social Services
: Young People
- Social Services provide things like home helps, meals on wheels/ frozen meals delivery, home care, respite care, assistance with getting up or bathing. Eligibility depends on an assessment of your needs. It is worth thinking carefully about your needs beforehand, as the person assessing you may not be familiar with the often profound but invisible effects of M.E. There is a charge for services, which varies depending on your financial circumstances. Self-referral is possible.
- One of the roles of Occupational Therapists (OTs) is to provide suggestions about what equipment might be useful for your needs. They are able to provide some equipment on long-term loan.
InterAction 30; 1999; pages 14-15 Social Services – a rough guide